Storm Eowyn rolled in today and I watched with futility as my bed pan (which I'd been using to prop the window open) flew off and danced on the wind. I hope it didn't hit anyone.
The side effects have made me miserable today but I know this is a time where I just have to grit my teeth and get through it.
It was the 16th of January and I'd been in hospital for 5 nights. I was feeling very positive and thinking a lot about what I was grateful for and how things could be so much worse. What if I'd just carried on as normal, brushed off the symptoms and injured myself? It could have been disastrous and thankfully I knew I was now in the right place.
I continued to have visitors. My friends were amazing and couldn't do enough for me. It seemed like everybody wanted to help and I got so many messages of support.
I had a visit from a member of the well being team. She was lovely and provided a little Teddy for my Daughter which made me unexpectedly emotional. I knew she'd be visiting later that day and I was looking forward to seeing her. I wanted to make her visits as fun as possible, so this would all be a vague memory for her some day.
On the 17th of January it dawned on me that I'd been busy on the training course just a week ago. How things had changed.
A couple of my old work colleagues visited and we laughed and joked like normal. I had some treatment while they were there and I could see my mate getting pale. I was also describing the bone marrow saga and the next thing I knew he was on the floor feeling queezy! I offered to call the nurse but he thankfully recovered after we changed the subject.
I'd had a good day but was struggling to sleep, so I made the excellent decision to go down a Google rabbit whole on the subject of treatment and my likelihood of making a full recovery. It wasn't good reading and it knocked me back a bit. I made the decision there and then to write any questions down if I was stressing about stuff and wait to get the proper answers from the experts.
I got some of those answers on the 18th January and my Consultant reassured me that APL is very treatable. I think, because of my age and level of fitness, they can afford to be aggressive with the treatment and this makes them cautiously optimistic. Yes, it's going to be a long hard road to navigate before I even think about trying to get to where I was with my fitness, but this is the fight now.
Treatment had been going well so far and they just told me to take it day by day.
I asked the question if I could have a bit of freedom to walk around the hospital grounds, etc. I was blown away when they said: "Do you want to go home for breakfast?"
The next thing I knew I was back at home, playing with my Daughter and carrying on like nothing had happened, for a little while. I even got told off for tidying up. It did us all so much good and I was on a high when I came back to the hospital at lunch time.
That evening I had an incredible surprise from my Martial Arts Coach. He'd been in touch with the Reorg charity and they'd provided some fantastic kit for when I eventually get back on the mats. Better still, there was a video message of support from the founder of the charity calling me out for a roll when I get better! It absolutely blew me away. The team also had a whip round for me and I put the money towards a laptop so I could write this blog.
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